Save The Date

Please join us on September 18th, 2025 for a very special 24 hour day of giving dedicated to Marjorie Guthrie. On Founder's Day, we honor Marjorie and her legacy by raising critical funds, voices, and awareness for the HD community all over the country, and across the world.

HDSA Research Fellowships 2025 Berman- Topper Family HD Career Development Fellowship Recipient

MEET OUR NEW PRESIDENT AND CEO AMY GRAY

We are excited to announce that Amy Gray has joined our organization as the new President and Chief Executive Officer.

Watch the HDSA EL-PFDD Meeting!

2023 HDSA Annual Report

We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we've achieved as One HDSA.

HDSA Publishes 2023 Year In Review Magazine

Take a look back on HDSA's achievements and top stories from 2023 in the latest Year In Review Magazine.

CLICK HERE

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