Rare Disease Day 2026

On Rare Disease Day, we come together to shine a light on the families impacted by Huntington’s disease and to remind them they are not alone.

Explore the Voice of the Patient Report to hear directly from people and families living with Huntington’s disease — their stories, struggles, and hopes that will help shape the future of care and advocacy.

📣 Share your voice! Take the HDSA Strategic Plan Survey and help shape the future of our mission.

CLICK HERE

GO TO OUR NORTHEAST REGION PAGE