Watch the HDSA EL-PFDD Meeting!

2023 HDSA Annual Report

We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we've achieved as One HDSA.

JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

HD SYMPTOMS AND TREATMENT IMPACT SURVEY

This first-of-its kind survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.

FOUNDER'S DAY

Please join us on September 18th, 2024, for a very special 24-hour day of giving dedicated to Marjorie Guthrie. On Founder's Day, we honor Marjorie and her legacy by raising critical funds, voices, and awareness for the HD community all over the country, and across the world.

SAVE THE DATE!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025 This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

HDSA Publishes 2023 Year In Review Magazine

Take a look back on HDSA's achievements and top stories from 2023 in the latest Year In Review Magazine.

Annual HDSA Convention Registration is Now Open!

Join us for the 39th Annual HDSA Convention in Spokane, Washington, May 30- June 1, 2024

CLICK HERE

GO TO OUR NORTHEAST REGION PAGE